About RTS
The RTS Support Group is both a registered charity and company limited by guarantee. We run on a not-for-profit basis by a volunteer management committee of Trustees.
The charity is run and its activities funded almost entirely by fundraising and voluntary donations.
Our Aims
To provide support to families and carers of people affected by RTS
To raise awareness of RTS amongst the medical community
To encourage and support research into the cause and effects of RTS
Skills, knowledge and experience
On the management committee, we have many collective years of experience of parenting children and young people with RTS up to and into adulthood.
We maintain close links with Professor Jane Waite and her team at the School of Psychology in the University of Birmingham, are regular attendees and speak at RTS events. We maintain contact with experts in the fields of genetics, SEN legal matters, speech and language, sleep and behavioural issues.
Contact is a UK-wide charity providing support, advice and information for families with disabled children.
Articles of association
You can read our full articles of association here (pdf).
How it all began
The charity started in a small way with Barbara Baron keeping in touch with other families affected by RTS by phone and letter.
- In 1986, several families got together, started producing a newsletter and arranging annual get-togethers.
- Over the years, membership has grown, links have been made with medical and psychology professionals, and events have become larger and are well attended.
- In 2012 we became a company limited by guarantee.
- We have a growing membership and are in touch with over 200 families.
- If you would like to hear more about our activities and receive regular updates, register with us.
RTS Family Network
Connecting families.
The RTS Support Group started off with a small number of families being contacted by Barbara Baron who kept in touch by phone and letter.
Over the years, the number of families involved has significantly increased, links have been made with relevant medical professionals and experts, and the charity communicates regularly with families by email and holds large well attended events.
Barbara’s ethos continues and the charity remains dedicated to bringing RTS families together to help provide support and to share information.
What is the RTS family network?
The Family Network is a forum where families can join informal discussions about topics of interest and make new connections, providing support for one another, and sharing experiences about their individual RTS journeys. Families can also connect day to day through a What’s App group, making it easy to keep in touch.
Why join the RTS family network?
Many families find a support system vital to help them navigate through the challenges and new situations that RTS can bring. We encourage families to connect with one another and build a support network with others who can relate to their experiences or are themselves in similar situations.
How to join
If you’d like to be part of the family network, please email info@rtsuk.org.uk, with your contact telephone number, town, the first three letters of your postcode and confirm that you are happy for your details to be shared with other RTS families in the network. You will receive contact details of other families in the network for you to make contact if you wish. We will also add your location to the map.