About RTS
The RTS Support Group is both a registered charity and company limited by guarantee. We run on a not-for-profit basis by a volunteer management committee of Trustees.
The charity is run and its activities funded almost entirely by fundraising and voluntary donations.
Our Aims
To provide support to families and carers of people affected by RTS
To raise awareness of RTS amongst the medical community
To encourage and support research into the cause and effects of RTS
Skills, knowledge and experience
On the management committee, we have many collective years of experience of parenting children and young people with RTS up to and into adulthood.
We maintain close links with Professor Jane Waite and her team at the School of Psychology in the University of Birmingham, are regular attendees and speak at RTS events. We maintain contact with experts in the fields of genetics, SEN legal matters, speech and language, sleep and behavioural issues.
Contact is a UK-wide charity providing support, advice and information for families with disabled children.
Articles of association
You can read our full articles of association here (pdf).
How it all began
The charity started in a small way with Barbara Baron keeping in touch with other families affected by RTS by phone and letter.
In 1986, several families got together, started producing a newsletter and arranging annual get-togethers.
Over the years, membership has grown, links have been made with medical and psychology professionals, and events have become larger and are well attended.
In 2012 we became a company limited by guarantee.
We have a growing membership and are in touch with over 200 families.
If you would like to hear more about our activities and receive regular updates, register with us.